eating, sleeping, walking, and talking

We have been home over 24 hours now and Norah is doing well. She didn't get to bed until late last night and we did have to check on her a 1/2 dozen times when she woke up but she did sleep late and then napped for a long time today as well. She didn't get enough sleep her last few days in the hospital because nurses were in and out of her room all day and night. In addition her the various medications also kept her awake. I am thrilled she is at home for uninterrupted sleep.

Norah's Granddad and Grandy went back to FL this morning. They spent 2 weeks with us through all of the highs and lows and we were sad to see them go. We took Norah to Goldberg's for a bagel breakfast where we were happy to see her eating. She continued to eat and drink throughout the day and are delighted seeing as she lost over 5 lbs over the past 3 weeks.

She is making progress with walking and talking although both (especially walking) wear her out quickly. She tells me, "My legs hurt" and "I ran out of breath Mommy." It breaks my heart to hear this and I tell her that it will take some time to rebuild her muscle and strength. So we will take the next 10+ days and do just that. We will visit the doctor a lot and hope that her lungs show lots of improvement each time we go.

Thank you again friends and family for your support and cheers around her homecoming. We have been blessed beyond belief w this medical miracle. love, B